CU Faces of Hope is a transformational research program that has created a multidisciplinary team of biomedical researchers, clinicians, and data scientists who will work together toward a single goal of better understanding the genetics behind various syndromes associated with craniofacial conditions.
Our goal is to create a large biorepository and provide the samples necessary to significantly advance our understanding of craniofacial conditions enabling the development of novel diagnostics and therapeutic tools to serve individuals with these anomalies and their care providers. Samples will be collected and stored in a secure database providing a host of COMIRB approved researcher’s simple and quick access to much-needed samples and medical information.
The medical term craniofacial relates to the bones of the skull and face. Craniofacial anomalies are a diverse group of conditions related to the growth of the face's head and bones. Anomaly is a medical term meaning "irregularity" or "different from normal." These differences are congenital (present at birth), and numerous variations range from mild to severe-where surgery may be required.
Following approval by a study coordinator and obtaining consent (or family member approval for children), participants will need to do the following: